Notes from a dragon mom

Whatever you are doing right now, read this. Whether you’re a parent or not, read this. It’s the must awful, beautiful, stop-you-in-your-tracks piece of writing I’ve seen for a good while.

MY son, Ronan, looks at me and raises one eyebrow. His eyes are bright and focused. Ronan means “little seal” in Irish and it suits him.

I want to stop here, before the dreadful hitch: my son is 18 months old and will likely die before his third birthday. Ronan was born with Tay-Sachs, a rare genetic disorder. He is slowly regressing into a vegetative state.  He’ll become paralyzed, experience seizures, lose all of his senses before he dies. There is no treatment and no cure…

Read the full article from the New York Times Sunday Review here.

Then hold on tight to the ones you love.